In June, I launched the column “Dementia Caregiving 101,” designed to be a lifeline for caregivers supporting loved ones facing the challenges of dementia. This column is dedicated to providing not only information but also heartfelt support and valuable resources for those who may struggle to attend caregiver groups or access outside services. Together, we can navigate this journey with compassion and understanding.

As a caregiver, when you embark on this journey, it’s important to address a few key matters. First, take the time to educate yourself; a wealth of valuable information is available online. Second, if you are married and have not yet organized your affairs, now is the time to do so. This also applies to individuals without a spouse or partner.

Over time, caregivers will need a Power of Attorney for both healthcare and financial matters. This document should specify that the designated agent is also the patient’s representative for HIPAA purposes and is authorized to exercise all HIPAA rights. Without these arrangements in place, it can be challenging to advocate effectively for your loved one.

I mention the foregoing because denial is often present at the onset of the disease. You might find yourself excusing behaviors of your loved one, such as simple forgetfulness or oversight. I can personally relate to this, as I once felt my loved one was ignoring me, which led to feelings of frustration and even anger.

If your loved one is reluctant to address his or her personal affairs — or yours as a couple — try approaching the conversation from the perspective that you want to make things easier as one ages and avoid problems left to address with property and personal belongings. Avoid framing it as a way to make your responsibilities as a caregiver easier.

If your loved one may be opposed to sharing their diagnosis, however, I encourage you to share the news with the family. Keeping everyone informed not only fosters open communication but also reveals who stands ready to support and who may choose to hang back.

Many caregivers express frustration that some relatives don’t get involved, often due to distance, differing connections, or a fear of the unknown. Involving everyone in discussions about the disease and actions taken can greatly help the caregiver. It creates a sense of unity and shared responsibility that is invaluable during such challenging times. It also creates a needed connection with family members who are either somewhat disconnected or are disconnected but begin to question decisions around care.

This month’s article would not be complete without addressing what I believe is crucial at the onset of a dementia diagnosis — seeking out a family therapist. Receiving any type of dementia diagnosis brings a whirlwind of emotions, including denial, loss, anger, and sadness. Healthily navigating this difficult news greatly benefits everyone involved, making it essential to seek professional help.

You can find a therapist through recommendations from your medical provider, family members or friends, or even by searching online. I strongly believe in the value of therapy to help manage the emotions that come with the diagnosis.

However, finding the right therapist is important. It’s much like choosing a pair of leather gloves; you have to try different options until you find the right fit. If your first choice doesn’t feel right, don’t give up — keep looking for someone who suits your needs. The support of a therapist can make a significant difference in this journey.

“The beginning is not the end,” a thought-provoking quote by Winston Churchill, reminds us that while there may be an end, it is not the final chapter of our journey. In the context of dementia, there are many meaningful steps we can take to uplift and support our loved ones.

I invite you to join me next month when I will share how we can enrich the lives of our loved ones and spark mental stimulation and promote cognitive function.